New Website Helping Special Needs Parents Find Resources
For new parents of special needs children, finding help or resources to point you in the right direction is very often difficult and confusing. But for Texas residents that is no longer the case. A new website was created to guide parents and persons with special needs to the help they have available.
It’s called, Navigate Life Texas and it provides links to information from healthcare and diagnosis, insurance and financial help (which includes links to state funded programs, not just Medicaid) and it even provides links to family support, education and support groups. (Truthfully, I wish I had thought of it)!
Here is the email that was sent in regards to this new resource:
Navigate Life website helps families find the resources they need
The Interagency Task Force for Children with Special Needs, supported by HHSC, launched NavigateLifeTexas.org on July 6 to help families who have children with disabilities and special health care needs.
More than a month after its launch, NavigateLifeTexas.org is making it easier for families to find help for their children with disabilities and special health care needs.
The site offers links to a variety of services from connecting with other parents to advice on schools and information on financial help.
While the site is designed for parents, health and human services agency staff have found it a valuable tool as well.
“We’re getting great feedback from staff who are using it to help families find services in their communities,” said Jennifer Sims of DFPS, a member of the task force that designed the site.
NavigateLifeTexas.org was created for anyone who needs to find relevant, comprehensive and accurate information about services in Texas for children with disabilities and special health care needs. The site was designed by and for parents, but it’s a valuable resource for caregivers, clinicians, professionals and support groups as well. A Spanish version of the site can be found at AvancemosJuntosTexas.org.
“Nothing like this has ever been done before,” said Lisa Collins, a special projects manager with HHSC, who helped roll out the website after it was launched. “We’ve even had employees tell us they will help market the site because it’s such a great resource for their clients.”
The website streamlines the process caregivers take to find information they need to help their loved ones who have special health care needs, and it covers subjects that range from early diagnosis to adulthood.
“Easier access to current and reliable information will empower more parents to be effective advocates for their children,” said Donna McCamant, who served on the task force and is also the mother of an adult daughter with multiple disabilities. “While the website is not an end-all, it does provide a wide range of information, from how to talk to your doctor to what transitioning to adulthood looks like. It can act as a roadmap.”
The Legislature created the task force and directed it to improve the coordination, quality and efficiency for the delivery of services for children with disabilities and special health care needs. The task force’s top priority is helping parents become more informed and empowered, which led to the creation of the website.
It is my hope that other states will create similar websites to direct us to these valuable resources. We at John-Michael’s Journey will continue to add to our collection of parental resources for our readers to learn and get the help they need and we hope that this becomes a valuable tool for our Texas parents.